Mission
Mission
Mission
Background and Rationale
Welcome to the HICC Registry
An international initiative dedicated to unraveling the mysteries of Homozygous Familial Hypercholesterolemia (HoFH).
Our Mission
At HICC, our mission is to gather de-identified clinical and genetic data from HoFH patients worldwide. Our current understanding of this rare disorder is limited, often leading to medical management based heavily on expert opinions. We aim to change that.
Our Approach
By bringing together physicians and scientists from around the globe, HICC strives to establish a comprehensive network. Our goals are to:
Illuminate the prevalence, clinical consequences, and treatments of HoFH.
Bridge the gap between research and real-world practice.
Join Us
Join us in our quest to redefine the understanding and care of HoFH. Together, we can make a difference.
Background and Rationale
Welcome to the HICC Registry
An international initiative dedicated to unraveling the mysteries of Homozygous Familial Hypercholesterolemia (HoFH).
Our Mission
At HICC, our mission is to gather de-identified clinical and genetic data from HoFH patients worldwide. Our current understanding of this rare disorder is limited, often leading to medical management based heavily on expert opinions. We aim to change that.
Our Approach
By bringing together physicians and scientists from around the globe, HICC strives to establish a comprehensive network. Our goals are to:
Illuminate the prevalence, clinical consequences, and treatments of HoFH.
Bridge the gap between research and real-world practice.
Join Us
Join us in our quest to redefine the understanding and care of HoFH. Together, we can make a difference.
Background and Rationale
Welcome to the HICC Registry
An international initiative dedicated to unraveling the mysteries of Homozygous Familial Hypercholesterolemia (HoFH).
Our Mission
At HICC, our mission is to gather de-identified clinical and genetic data from HoFH patients worldwide. Our current understanding of this rare disorder is limited, often leading to medical management based heavily on expert opinions. We aim to change that.
Our Approach
By bringing together physicians and scientists from around the globe, HICC strives to establish a comprehensive network. Our goals are to:
Illuminate the prevalence, clinical consequences, and treatments of HoFH.
Bridge the gap between research and real-world practice.
Join Us
Join us in our quest to redefine the understanding and care of HoFH. Together, we can make a difference.
Contact
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