HICC
HICC
HICC
The
Homozygous Familial Hypercholesterolemia
International Clinical Collaboration
The
Homozygous Familial Hypercholesterolemia
International Clinical Collaboration
The
Homozygous Familial Hypercholesterolemia
International Clinical Collaboration
Global reach
The only global HoFH registry
>900 HoFH patients included
>160 international collaborators
>90 institutions in 40 countries
Read More
Global reach
The only global HoFH registry
>900 HoFH patients included
>160 international collaborators
>90 institutions in 40 countries
Read More
Global reach
The only global HoFH registry
>900 HoFH patients included
>160 international collaborators
>90 institutions in 40 countries
Read More
Our latest Publication
Cardiovascular outcomes in patients with homozygous familial hypercholesterolaemia on lipoprotein apheresis initiated during childhood: long-term follow-up of an international cohort from two registries
Cardiovascular outcomes in patients with homozygous familial hypercholesterolaemia on lipoprotein apheresis initiated during childhood: long-term follow-up of an international cohort from two registries
May 14, 2024
The Lancet Child & Adolescent Health
Read this article
The clinical aspects of HoFH are mainly based on small and regional, often observational, studies. The natural history of HoFH and the relevance of predictive biomarkers are largely unknown. Treatments vary widely by region. Despite existing diagnosis and treatment guidelines, large regional differences are present regarding diagnosis and accessibility of treatments.
Multinational collaboration is essential to increase understanding of HoFH. The HoFH International Clinical Collaboration (HICC) was established to create an international network of healthcare providers to share data and knowledge on HoFH patients.
The clinical aspects of HoFH are mainly based on small and regional, often observational, studies. The natural history of HoFH and the relevance of predictive biomarkers are largely unknown. Treatments vary widely by region. Despite existing diagnosis and treatment guidelines, large regional differences are present regarding diagnosis and accessibility of treatments.
Multinational collaboration is essential to increase understanding of HoFH. The HoFH International Clinical Collaboration (HICC) was established to create an international network of healthcare providers to share data and knowledge on HoFH patients.
Read more about our mission
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